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Provides peer-to-peer support that connects blood cancer patients and their loved ones with trained peer volunteers who have faced a similar diagnosis to foster understanding and meaningful conversation. Volunteers are equipped with basic counseling skills, updated resource knowledge, and a commitment to confidentiality, providing emotional support and insights that help both patients and families feel less alone during their journey.
Provides peer-to-peer support that connects blood cancer patients and their loved ones with trained peer volunteers who have faced a similar diagnosis to foster understanding and meaningful conversation. Volunteers are equipped with basic counseling skills, updated resource knowledge, and a commitment to confidentiality, providing emotional support and insights that help both patients and families feel less alone during their journey.
Categories
Cancer
Non-Hodgkin's Lymphoma
Patient to Patient Networking
Multiple Myeloma
Leukemia
Lymphoma
Provides a helpline that connects patients to resources in their community and offers information on patient services, support groups, social services, medical equipment, wigs and prostheses, transportation, lodging, financial programs and tobacco quitline.
Provides a helpline that connects patients to resources in their community and offers information on patient services, support groups, social services, medical equipment, wigs and prostheses, transportation, lodging, financial programs and tobacco quitline.
Categories
Medical Information Services
Friendly Visiting
Families/Friends of People With Cancer
Non-Emergency Medical Transportation
Patient to Patient Networking
Subject Specific Public Awareness/Education
Wellness Programs
Tobacco Use Education/Prevention
Cancer
Caregivers
Prosthetic Devices
Disease/Disability Information
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Educational Activities: Partners with experts in the field of pediatric cancer, support, education and outreach as well as other support groups to offer virtual educational, and question and answer sessions on living with a childhood cancer diagnosis
Family Activities: Offers a variety of activities to families to provide a distraction from the daily life with cancer
Family Care Kits: Provides newly diagnosed families with a soft-side cooler designed to transport medications that need to be kept cool as well as a gas gift card, Mayo parking pass, postage stamps, printer paper, snacks, a few toiletries and VISA gift card
Monthly Family Gatherings: Families gather to share a meal together. After the meal, parents have time to talk and share with one another, while the patient and their siblings get to spend time together.
Tomorrow's Chapter: In an effort to serve the needs of families grieving the loss of their child to childhood cancer, bereavement support is offered
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Educational Activities: Partners with experts in the field of pediatric cancer, support, education and outreach as well as other support groups to offer virtual educational, and question and answer sessions on living with a childhood cancer diagnosis
Family Activities: Offers a variety of activities to families to provide a distraction from the daily life with cancer
Family Care Kits: Provides newly diagnosed families with a soft-side cooler designed to transport medications that need to be kept cool as well as a gas gift card, Mayo parking pass, postage stamps, printer paper, snacks, a few toiletries and VISA gift card
Monthly Family Gatherings: Families gather to share a meal together. After the meal, parents have time to talk and share with one another, while the patient and their siblings get to spend time together.
Tomorrow's Chapter: In an effort to serve the needs of families grieving the loss of their child to childhood cancer, bereavement support is offered
Categories
Cancer
Patient to Patient Networking
Bereaved Parent Support Groups
Health/Disability Related Support Groups
Families/Friends of People With Cancer
Parent to Parent Networking
Families/Friends of Individuals With Health/Disabilities Related Issues Support Groups
Gas Money
Undesignated Temporary Financial Assistance
Disease/Disability Information
Offers a free service where an allergist will answer questions about asthma and allergies. Provides only general advice about managing asthma or allergies, medicines, and treatments. Does not answer questions about specific consumer products.
NOTE: The information provided is not a substitute for medical advice from a doctor. Always talk with a doctor before changing an asthma or allergy management plan.
Offers a free service where an allergist will answer questions about asthma and allergies. Provides only general advice about managing asthma or allergies, medicines, and treatments. Does not answer questions about specific consumer products.
NOTE: The information provided is not a substitute for medical advice from a doctor. Always talk with a doctor before changing an asthma or allergy management plan.
Categories
Allergies
Health Issues
Specialized Information and Referral
Patient to Patient Networking
Disease/Disability Information
Asthma
- Public education/information
- Research
- Annual education fair
- Quarterly newsletter (for members)
- Pamphlets, brochures, books, videos
- One-on-one mentoring for those newly diagnosed
- Professional medical information
- Camp Oasis at Camp Heartland - Residential camp for any child with medically stable Crohn's disease or ulcerative colitis
- Public education/information
- Research
- Annual education fair
- Quarterly newsletter (for members)
- Pamphlets, brochures, books, videos
- One-on-one mentoring for those newly diagnosed
- Professional medical information
- Camp Oasis at Camp Heartland - Residential camp for any child with medically stable Crohn's disease or ulcerative colitis
Categories
Crohn's Disease
Ulcerative Colitis
Patient to Patient Networking
Irritable Bowel Syndrome
Therapeutic Camps
Disease/Disability Information
The Lupus Foundation of America provides education and support services to people affected by lupus. The foundation collaborates with experts to provide clear, easy-to-use information, programs, and resources to help people navigate their journey with lupus. Programs offered:
- Health Education Specialists: Specialists are available to answer questions and provide caring support to people with lupus. Health Education Specialists are specially trained to provide people affected by lupus with non-medical counseling, disease education, information, and helpful resources. Spanish-speaking health education specialists are also available.
- The Expert Series: An educational podcast that features empowering conversations with leading lupus experts that focus on helping people live with lupus
- Local Support and Programs: There are opportunities to engage locally and participate in education events and support groups dedicated to improving the lives of people affected by lupus. Experts can help individuals find resources, support groups, and get involved in the fight to end lupus.
- LupusConnect: An online community where people can engage with others to share experiences, find emotional support, and discuss practical ways to live and cope with the disease
- Lupus & You: A free educational series where people with lupus, their family, and friends can learn more about the latest in lupus research and managing the disease. Provides advocacy and panelist events in-person or virtual formats.
- National Resource Center: A collection of up-to-date resources and information on lupus. The Resource Center educates, empowers, and connects individuals to resources, educational articles, and support services about lupus.
- Strategies to Embrace Living with Lupus Fearlessly (SELF): A free online self-management app program designed to help people with lupus live their best life. SELF is tailored to support people with lupus to manage symptoms, stress, medications, and working with their health care team.
- Take Charge: A weekly education email series designed to give people with lupus, and those recently diagnosed, tips, and resources that can help them better manage their lupus and it's everyday challenges
Find a local Lupus Foundation chapter at www.lupus.org/chapters.
The Lupus Foundation of America provides education and support services to people affected by lupus. The foundation collaborates with experts to provide clear, easy-to-use information, programs, and resources to help people navigate their journey with lupus. Programs offered:
- Health Education Specialists: Specialists are available to answer questions and provide caring support to people with lupus. Health Education Specialists are specially trained to provide people affected by lupus with non-medical counseling, disease education, information, and helpful resources. Spanish-speaking health education specialists are also available.
- The Expert Series: An educational podcast that features empowering conversations with leading lupus experts that focus on helping people live with lupus
- Local Support and Programs: There are opportunities to engage locally and participate in education events and support groups dedicated to improving the lives of people affected by lupus. Experts can help individuals find resources, support groups, and get involved in the fight to end lupus.
- LupusConnect: An online community where people can engage with others to share experiences, find emotional support, and discuss practical ways to live and cope with the disease
- Lupus & You: A free educational series where people with lupus, their family, and friends can learn more about the latest in lupus research and managing the disease. Provides advocacy and panelist events in-person or virtual formats.
- National Resource Center: A collection of up-to-date resources and information on lupus. The Resource Center educates, empowers, and connects individuals to resources, educational articles, and support services about lupus.
- Strategies to Embrace Living with Lupus Fearlessly (SELF): A free online self-management app program designed to help people with lupus live their best life. SELF is tailored to support people with lupus to manage symptoms, stress, medications, and working with their health care team.
- Take Charge: A weekly education email series designed to give people with lupus, and those recently diagnosed, tips, and resources that can help them better manage their lupus and it's everyday challenges
Find a local Lupus Foundation chapter at www.lupus.org/chapters.
Categories
Lupus Erythematosus
Health/Disability Related Support Groups
Disease/Disability Information
Workshops/Symposiums
Patient to Patient Networking
Web Based Discussion Groups/Live Chat
Offers the following services:
- ABTA CommYOUnity, a nationwide volunteer network
- ABTA CommYOUnity Connect, a peer-to-peer mentorship program
- Care Consultants are available through CareLine to answer questions
- Comprehensive online resources on the website
- "Connections" online support group and message board forum
- Educational programming, including patient/family conferences, meetings, and "Anytime Learning" webinars
- Funding for brain tumor research at institutions throughout the United States and Canada
- "MyCaringLink" personalized online caregiver support tool
- Monthly e-news and bi-annual headlines newsletter
- Nationwide listings of brain tumor support groups on website (click on "Care and Treatment", "Support and Resources", then "Support Groups")
- Publications on tumor types and treatments, available in print or for download (Spanish available)
- Social networking via Facebook and Twitter
- "TrialConnect" clinical trial matching service
Offers the following services:
- ABTA CommYOUnity, a nationwide volunteer network
- ABTA CommYOUnity Connect, a peer-to-peer mentorship program
- Care Consultants are available through CareLine to answer questions
- Comprehensive online resources on the website
- "Connections" online support group and message board forum
- Educational programming, including patient/family conferences, meetings, and "Anytime Learning" webinars
- Funding for brain tumor research at institutions throughout the United States and Canada
- "MyCaringLink" personalized online caregiver support tool
- Monthly e-news and bi-annual headlines newsletter
- Nationwide listings of brain tumor support groups on website (click on "Care and Treatment", "Support and Resources", then "Support Groups")
- Publications on tumor types and treatments, available in print or for download (Spanish available)
- Social networking via Facebook and Twitter
- "TrialConnect" clinical trial matching service
Categories
Web Based Discussion Groups/Live Chat
Printed/Printable Materials
Workshops/Symposiums
Brain Tumors
Specialized Information and Referral
Support Group Clearinghouses
Health/Disability Related Support Groups
Information Clearinghouses
Funding
Disease/Disability Information
Patient to Patient Networking
Women, post-breast cancer surgery, can receive a visit or call from ACS volunteers who are breast cancer survivors. The volunteers address patient concerns about post-operative surgery.
Women, post-breast cancer surgery, can receive a visit or call from ACS volunteers who are breast cancer survivors. The volunteers address patient concerns about post-operative surgery.
Categories
Patient to Patient Networking
Breast Cancer
Disease/Disability Information
Mastectomy Patients
- Public education/information
- Research
- Annual education fair
- Quarterly newsletter (for members)
- Pamphlets, brochures, books, videos
- One-on-one mentoring for those newly diagnosed
- Professional medical information
- Camp Oasis at Camp Heartland - Residential camp for any child with medically stable Crohn's disease or ulcerative colitis
- Public education/information
- Research
- Annual education fair
- Quarterly newsletter (for members)
- Pamphlets, brochures, books, videos
- One-on-one mentoring for those newly diagnosed
- Professional medical information
- Camp Oasis at Camp Heartland - Residential camp for any child with medically stable Crohn's disease or ulcerative colitis
Categories
Crohn's Disease
Ulcerative Colitis
Patient to Patient Networking
Irritable Bowel Syndrome
Therapeutic Camps
Disease/Disability Information
Support groups are available for individuals experiencing vision loss, offering a place to connect with others experiencing vision loss and share ideas. Each group meets monthly and transportation assistance is available.
Peer-to-Peer Mentor Network matches individuals struggling emotionally with a mentor who has also walked that journey.
Support groups are available for individuals experiencing vision loss, offering a place to connect with others experiencing vision loss and share ideas. Each group meets monthly and transportation assistance is available.
Peer-to-Peer Mentor Network matches individuals struggling emotionally with a mentor who has also walked that journey.
Categories
Patient to Patient Networking
Health/Disability Related Support Groups
Visual Impairments
Supportive network linking individuals and families with similar challenges including:
- Adults who have bleeding disorders
- Adults who have bleeding disorders and are HIV positive or have AIDS
- Families of children who have bleeding disorders
- Individuals with bleeding disorders and Hepatitis C
- Newsletter and brochures on bleeding disorders and its complications including HIV/AIDS and hepatitis
Supportive network linking individuals and families with similar challenges including:
- Adults who have bleeding disorders
- Adults who have bleeding disorders and are HIV positive or have AIDS
- Families of children who have bleeding disorders
- Individuals with bleeding disorders and Hepatitis C
- Newsletter and brochures on bleeding disorders and its complications including HIV/AIDS and hepatitis
Categories
Disease/Disability Information
Patient to Patient Networking
AIDS
HIV Infections
Families/Friends of People With Disabilities
Hemophilia
Hepatitis
Newsletters
Provides a confidential and anonymous peer-to-peer approach to mental health recovery, support and wellness. Calls are answered by a team of professionally trained Certified Peer Specialists, who have first hand experience living with a mental health condition.
Provides a confidential and anonymous peer-to-peer approach to mental health recovery, support and wellness. Calls are answered by a team of professionally trained Certified Peer Specialists, who have first hand experience living with a mental health condition.
Categories
Patient to Patient Networking
Talklines/Warmlines
Mental Illness/Emotional Disabilities
